Saturday, February 15, 2014

Update post Feb 2014

It has been a little while since I have posted!  We are finally moved in, and are still adjusting to life in the new house. Ava has gone through some behavior changes that made life a bit of challenge lately.  We had her to see another specialist who added a small dose of Risperdal to her daily routine. I may say the changes have been a Godsend. After months of dealing with a very aggressive and angry child, she is back to a loving and mellow child. We hated to have her put on anything, but I really think she likes to be happy and not angry all the time. Her communication skills are still improving, which is making us very happy also. 

My little girl also is now 8!! I cannot believe how fast time is flying.  A friend of ours made this shirt for her birthday, I designed the front and she added the back <3

It says " Special Needs? 
Nope, just 
Kleefstra Syndrome " 

Sweet Little Ava

Here she is on her birthday, sick! We had to cancel her party, but we still ate the cake!

A happy Girl <3

This was a find at Big Lots. Her very own "real" guitar. Never would I have thought a year ago that she would be playing one, but yet here she is going to town on it. 
 She continues to amaze me, and even though we have had our rough patches lately, I feel the best is yet to come.  

Here is to 2014!!

Friday, January 3, 2014

Christmas Miracles

This Christmas, Ava was given the gift of a new Amtryke. It was given by Ambucs of Altoona and a very special family and little girl, Leah, who sponsored Ava. 
We are very humbled by the generosity of everyone, who made this dream come true for our Ava.  Our family was invited to the Christmas dinner, which was so nice, we got to see Santa, and met some of the most amazing people. 
Thank you, Thank you, Thank you!

 I cannot forget to thank Kara for she is the one that sets the wheels in motion for all of this. <3

 The new ride.

 Santa secrets.
 Leah and Santa <3

.. and getting ready to go home.

Thank you again everyone and we hope you all had a 
Merry Christmas and a fabulous New Year to come!

Monday, December 9, 2013

Successful Sensitive Santa 2013

Sunday December 8 was Ava's trip to Saint Francis University to see Santa. She was very good all morning and did not give me any problems getting dressed.  We followed the reindeer hoof prints to where Santa was going to be. She sat on the couch and waited anxiously for him to show.

There he is! She gets excited and starts waving.

He slowly comes over and sits on the floor. She is happy and cautious at the same time. 

We are not sure how it's going to go, but it was already so much better then last year. She only took a few mins to let him get close. She immediately leans in for a better look...

  Oh what's this, She blew him a kiss!

 They soon were like old friends giving high fives...

telling stories...



 and hairstyle tips.

Ava was just fascinated with every aspect of him.

 It was a good time had by all.

After a lot of high fives, kisses and exchanging of hats....

 It was soon time to say good bye.

 She watched him go with bated breath.

Bye Santa!!!!

 Broke my heart, she signed for more...

but she was a happy little girl in the elevator.

Thank you so much SFU and the Autism task force for allowing our special little girl to have a personal and wonderful time with Santa.  To see the wonder in her eyes and to experience her joy and amazement will forever be etched in our hearts.

And Thank You Santa for making us all 
still believe in the miracles of Christmas!

Thursday, December 5, 2013


Ava is getting a new bike very soon, 
so we decided to donate her therapy bike to 
Saint Francis University
PT Dept so that it can help other children too!

Wednesday, November 20, 2013

Sensitive Santa 2013

We have a poster girl! 

 It's that time of year again! 

If your children have sensory issues with Santa, sign them 

up for Saint Francis Univ Sensitive Santa. You can fine more 


Friday, November 15, 2013

2013 Gift Guide for Special Needs Children

This year I thought I would do a small toy gift guide for special needs children. These are just from my own opinion and some of them we have, had, or I plan on getting for Ava. Most of these are sensory and cognitive toys, with a little bit of practicality thrown in. Every Christmas Ava has gotten therapy toys, and they have always been a big hit.  This year will be no different.  Hope this gives you some different ideas for the upcoming holiday season!  

2013  Gift Guide for Special Needs Children

Click on the pictures to be taken to for more information on the products.

Set of 3 Assorted Tangle Jr. Fidget Toys - 

Fuzzy, Metallic and Textured

Toys to keep your child busy, comes in lots of styles and colors.

Mega Bloks Big Building Bag, 80-Piece (Classic)

Building blocks that are big and easy to sort and stack. Light up your child’s imagination with these blocks. They will be using fine motor skills and cognitive thinking while they play.

Learning Resources Jumbo Farm Counters

Sort by colors, or animals, and learn to count!

Little Tikes Clearly Sports Bowling

These look so cool!  Your child will be using their hand eye coordination to knock them down and also their stacking abilities to put them to rights again.  They also have colorful balls in them for visual and auditory senses.

All In Toy's Liquid Motion Bubbler Fidget

A visual stimulation toy, that should grab the attention, 
at least for a little while.

Fisher-Price The Farmer Says See 'n Say

This reminds me of the old classic!  Music, sounds, and animals makes for a lot of ways to interact with your child.

Abilitations Biggie Frog Bean Bags 

For the child that loves to throw things, do it with a fun flare!

Sensory Seeker Combo Pack

For the sensory seeking children, and with a variety of toys, you child is sure to find a favorite one.

Fisher-Price Laugh & Learn: Learning Piggy Bank

This was a favorite in our house for many, many years! Sorting, counting and music gave us a lot of fun interactions!

Learning Resources Ruff's House

 Teaching Tactile Set

Play with the puppy while learning, 
textures, counting, and colors.

Gonge Riverstones

A fun way to incorporate balance and coordination.

Learning Resources Talk Board (Set Of 3)

Draw or place a picture on the board, 
and then record what it is. 
Can be used in a wide variety of ways.

Lacing & Tracing Dinosaurs

These fun dinosaurs give you 
several ways to teach fine motor skills.

Fold & Go Trampoline

Work your child's muscles, while they are having fun.

Edushape Baby Connects, Set of 12

These are fun little toys that teach colors, counting, shapes, great for fine motor skills!

Isokinetics Inc. Brand Exercise Ball - Anti-Burst - 3 Sizes - Choice of Color - For Fitness, Therapy, Sports Training, Yoga and More

We have had exercise balls in the house for the last 10 years. Great way to get your child to work on core muscles, balance, coordination and much more!

Stocking Stuffers!!!!

Nuk Brush

Great for oral motor stimulation!!

Tactile Tiger Hand Fidget

Sensory Stimulation brush

Mecanaids Adapted Scissors 

with Easy Grip for Right or Left Hand

Great for just learning how to cut, they spring back to aid in fine motor skills.

DenTrust 3-Sided Toothbrush ::

 Specialty Toothbrush for AUTISM & Special Needs

Practical and brilliant!  Sometimes I only have a couple tries to get them done before she has a complete melt down.

Some books for the caregivers.

Always trying to expand my horizons and learn what I can, because no one else will take care of her like I do.  It's always nice to see how other parents do things and get a new perspective!


There are a lot of great toys out there
 for special needs/sensory children.
 I know you can find 
something that is fun and educational too!
Happy Holidays!!